Cystic Fibrosis

The following Cystic Fibrosis Education Tools were developed for professionals, patients, families, and the community.

Nutrition Care in Cystic Fibrosis - This curriculum is delivered in four modules and includes course objectives, case studies, and question assessments. This is supplemented with an On-Line Textbook. A video presentation about the development of these modules is available here: Introduction to Nutrition Care in Cystic Fibrosis Education Modules  and overview of the curriculum is available here:Nutrition Care in Cystic Fibrosis

Module 1: Cystic Fibrosis Overview - PowerPoint presentation

•   Life Course Theory
•   Evidence-Based Practice Recommendations Article

Module 2: Nutrition Assessment and Intervention in Pediatric CF - PowerPoint presentation

• Cultural Awareness in Nutrition Counseling
• Culturally Sensitive Health Questions
• Nutrition Diagnostic Terminology

Module 3: Nutrition-Related CF Complications - PowerPoint presentation

• Liver Disease in Cystic Fibrosis Review
• Clinical Care Guidelines for CF-Related Diabetes Article

Module 4: Patient-Centered Behavior Interventions - PowerPoint presentation

• Needed: A New Appreciation of Culture and Food Behavior Article

Other Cystic Fibrosis Education Tools:

• Cystic Fibrosis Challenge - an interactive PowerPoint-based game to help educate teens/young adults about CF facts and fallacies
• Cystic Fibrosis Medication Reminder Card
• Transition Passport - a comprehensive checklist for healthy transition to adult CF care

For more information contact Lisa Rascon at lrascon@peds.arizona.edu or call 520-626-1567.

Western States Pediatric Pulmonary Case Studies

The University of Arizona Pediatric Pulmonary Center facilitates a monthly Western States Pediatric Pulmonary Case Study for pediatric pulmonologists, fellows, and trainees. These case studies have grown from only including the Western States to national and international participants. Each month there is a new presenter from one of the participating institutions. 

19-20 Archived Presentations:

• 'Occams Razor Fail' - Dr. Mfon Udoko from Children's Hospital Colorado
• Western States Pulmonary Case Conference Presentation - Dr.  Janet Trang Lim of UCSF
• 'An Atypical Wheeze' - Dr. Cissy Si from Stanford University
• 'Congenital Thoracic Abnormalities & Their Pulmonary Associations' - Dr. Nastasia Nianiaris from University of California Irvine / Miller Children's & Women's Hospital, Long Beach
• 'The Alphabet Soup of Bronchiectasis' - Dr. Daniel Hinds from Children's Hospital Colorado
• 'Non-COVID infections still a problem' - Dr. Leah Nuss from Seattle Children's Hospital
• 'Walking through the EVALI of Death' - Dr. Katherine Lewinter from Children's Hospital Los Angeles
• 'Effusion Confusion!' - Holly Vo, MD, MPH, MSc from Seattle Children's Hospital
• 'Incidentaloma: Now what?' -Nina Suresh, MD, MS from Stanford

18-19 Archived Presentations

• 'An Interesting Case of Neonatal Tachypnea'- Dr. Laura Ellington, Seattle Children's Hospital
• 'Chronic Cough: The Long and the Thin of it...' - Dr. Monica Vielkind, CHCO
• 'A Case of Recurrent Pneumonia: Navigate and Treating an Unexpecting Finding' - Dr. Ruth Siew, UCSD
• 'Not Your Ordinary Teenage Drama Queen: An Unusual Etiology of Chest Pain' - Dr. Michelle Sobremonte-King, CHCO
• '(Un)even Steven: An Unusual Complication of Stevens-Johnson Syndrome' - Dr. Eric Hamerger, Stanford University
• 'Why is He Still So Hypoxic?' - Dr. Nancy Hong, CHCO

To be included in future case studies or to view an archived case study, please contact Amanda Sharpe, BS at Ajsharpe@arizona.edu